Tineke Veenstra

Story of my life

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  • 2017,  Curaçao,  Emigreren

    Ontmoet uw nieuwe huisarts

    Tineke Veenstra / 10 november 2017 / 4 Reacties

    Vrijdag 10 november 09:30: Het moment dat je wist dat komen zou… Het liefst had ik een volledig nieuw begin gemaakt. Die 2 koffers medicijnen, 300 pagina’s dossier en 10 jaar ‘ervaring’ in…

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  • 2012,  Hospital

    Second opinion

    Tineke Veenstra / 18 januari 2012 / 0 reacties

    Ik word via mijn blog vaak gewezen op mijn rechten als patiënt. Zo zijn er een aantal van mijn volgers die mij meerdere malen hebben geadviseerd een second opinion te doen. Ik twijfelde.…

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tinekeveenstra.nl

Hi, welkom op tinekeveenstra.nl. Ik ben Tineke en ik ben 30 jaar. Sinds 2007 ben ik chronisch ziek. Ik ben geboren in Friesland.

Sinds 2017 heb ik op het prachtige Curaçao gewoond. Ook had ik een half jaar lang een ‘thuis’ in een kliniek in het Colombiaanse Bogotá. Hier werd hard gewerkt aan een betere kwaliteit van leven voor mij doormiddel van stamceltherapie. Sinds februari 2020 ben ik weer terug in Nederland. Wederom vanwege mijn gezondheid…

Mijn blog is mijn therapie & uit de hand gelopen hobby. Op deze pagina kun je mijn verhalen volgen.

Liefs, Tineke

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Finishing my weekend with a little music. I want t Finishing my weekend with a little music. I want to wish you all a very nice week! I hope to move into my appartment this week. What are your plans? Lots of love and stay safe in these crazy times 🤟🏼♥️ #2020 #weekend #week #sunday #music #life #love #benice #bebetter #covid #crazytimes #staysafe #stayhealthy #corona #moving #appartment #chronicillness #sjögrens #netherlands
Last weekend & monday I got sick again after 3 wee Last weekend & monday I got sick again after 3 weeks of feeling better. My adrenal glands (organs close to the kidneys) are failing me again. The hospital, thank god, reacted quickly and increased my Prednisone and Primperan again untill december. Also still on medical food. But I am so happy that I gained some weight, I can stay home and this I trust this will pass... We are working towards my own home. Hopefully I can move in next week. Lots of love ♥️ #2020 #chronicallyill #chronicillness #adrenalglands #failing #fail #prednisone #primperan #sjögrens #hope #love
Four days after picking up the keys we (read: my d Four days after picking up the keys we (read: my dad) Is almost done painting. Luckily he loves to work alone because my body can not handle painting walls anymore. So I serve tea, cookies and pick up stuff at stores. The floor is still good. So this job will be done soon. I can not wait to get my stuff out of their boxes again. To have my own space again... Shout out to my family/friends. They always always always get the job done 💪🏼♥️ #2020 #newhome #house #ownplace #love #thankyou #shoutout
Yesss! After 9 months I got keys to my own place a Yesss! After 9 months I got keys to my own place again. I am so happy with this 🙏🏼 #newhome #happy #ownplace #keys #apartment
If you can dance while being sick, I definitly can If you can dance while being sick, I definitly can too, for you Tia! All my love and prayers for you from Holland 🇾🇪. You got this 🤟🏼♥️ @thetiabeestokes in duet with @scottdhenry31 #love #power #positivity #prayers #tiktok #fortia #cancer #covid
A week out of the hospital. I already can eat agai A week out of the hospital. I already can eat again without the medicine they gave me 🙏🏼. Only 3x a day Medical Strawberry shake and prednisone. This took way to long but I will get my strenght back. In the mean time you guys can enjoy my bad dance moves #medical #hospital #dancing #fight #fightsong #chronicillness #skinny #nutridrink #chronic #life #thisisreal #reality
Thank you so much @iamemmavrw Big shout out. I lov Thank you so much @iamemmavrw Big shout out. I love them so much 🤩 #digitalart #friend #photos #art #gift
Bought a new toy after a little practice in Arnhem Bought a new toy after a little practice in Arnhem last weekend. A ukelele... I can barely play half a song but there is lots of stuff online so I can try to teach myself #2020 #ukelele #instrument #music #learning #play #forfun
When it rains and you just have nothing better to When it rains and you just have nothing better to do then a little try-out make-up (because I am a only uses mascara girl) for the wedding of one of my best friends on friday #2020 #tryout #makeup #monday #mondaymood #rain #bored #boredinthehouse
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